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• Biography/ Background

  BHSc(Hons), MPH, PhD.

  Jesia is a Data Manager for the Australian Cerebral Palsy (CP) Biobank, and a member of the Australian Collaborative Cerebral Palsy Research Group. The Biobank contains DNA samples for parent-child trios for nearly 500 sporadic and familial CP cases and clinical information. In addition, the Biobank contains DNA samples for 1,500 controls. A team of geneticists are involved in whole exome/genome sequencing to investigate the genetic causes of CP.

  Jesia has been previously employed as a researcher at:

  The Centre for Pharmaceutical Research at the University of South Australia in laboratory-based research for clinical drug trials;

  The Clinical Epidemiology Unit at the Queen Elizabeth Hospital in the field of patient safety research;

  The Australian Institute of Health and Welfare (AIHW) National Injury Surveillance Unit at Flinders University. Duties involved analysing national mortality and hospital morbidity datasets and producing AIHW reports and journal articles on injury-related topics; and

  The School of Public Health at the University of Adelaide on the South Australian Early Childhood Data Demonstration Project that linked de-identified administrative data for all children born in South Australia between 1999 and 2005, led by Prof John Lynch. Duties involved cleaning and checking linkages were satisfactory and analysing the 9 data sources spanning child health, education and welfare services.

   

  Jesia's thesis is entitled: 'Postmarketing Vaccine Safety Surveillance Using Data Linkage: The Issue of Consent'. The research was funded by the Australian Research Council as one component of a Linkage Project grant entitled: Vaccine Assessment Using Linked Data (VALiD). The objectives of the VALiD project were to examine the feasibility and effectiveness of linking the Commonwealth’s Australian National Childhood Immunisation Register (ACIR) with national hospital and deaths data from selected jurisdictions. Jesia’s thesis topic involved the conduct of a randomised controlled trial in 2009 of 1,129 parents to examine whether it was feasible to obtain opt-in or opt-out parental consent for childhood vaccine safety surveillance, followed by a survey of 2002 South Australians about attitudes to data linkage and opinions on the need for consent. The thesis comprises four papers that are published in peer-review journals.

• Awards & Achievements

  Dean's commendation for doctoral research excellence, University of Adelaide; 2013.

  Awarded best PhD thesis in 2012. School of Population Health, University of Adelaide; 2012.

  Student travel bursary award. $400 award given in recognition of exemplary abstracts. Australasian Epidemiological Association of Australia Conference ‘Combining Tradition and Innovation’; 2011 Sep 19-21; Perth.

  RF Whelan Prize, 30th Annual Australasian Society for Clinical and Experimental Pharmacologists and Toxicologists (ASCEPT); 1996.

• Teaching Interests

  Casual tutor:
  Public Health Sciences II (Biostatistics) (2011-2012) and Public Health 1A (2009-2010,2012) & 1B (2010) Discipline of Public Health, University of Adelaide

  Epidemiology & Biostatistics (2004-2008), and Master of Clinical Rehabilitation (2007-2008), School of Medicine, Flinders University

• Research Interests

  Jesia has broad areas of interest in relation to data linkage studies of childhood outcomes. These include cerebral palsy, early childhood development, injury, and vaccine safety surveillance.

• Research Funding

  Australian Research Council APAI scholarship

• Publications

  ORCID ID: 0000-0002-4446-7927

  Pham R, Mol BW, Gecz J, MacLennan AH, MacLennan SC, Corbett MA, van Eyk CL, Webber DL, Palmer LJ, Berry JG. Definition and diagnosis of cerebral palsy in genetic studies: a systematic review. Dev Med Child Neurol. 2020 (In press, accepted 23/4/20). doi: 10.1111/DMCN.

  Duszynski KM, Pratt NL, Lynch JW, Berry JG, Gold MS; Vaccine Assessment Using Linked Data (VALiD) Working Group. Use of different combination diphtheria-tetanus-acellular pertussis vaccines does not increase risk of 30-day infant mortality. A population-based linkage cohort study using administrative data from the Australian Childhood Immunisation Register and the National Death Index. Vaccine 2019;37:280-288. doi: 10.1016/j.vaccine.2018.11.025.

  van Eyk CL, Corbett MA, Frank MS, Webber DL, Newman M, Berry JG, Harper K, Haines B, McMichael G, Woenig J, MacLennan AH, Gecz, J. Targeted resequencing identifies genes with recurrent variation in cerebral palsy. NPJ Genom Med 2019;4:27. doi: 10.1038/s41525-019-0101-z.

  Corbett MA, van Eyk CL, Webber DL, Bent SJ, Newman M, Harper K, Berry JG, Azmanov DN, Woodward KJ, Gardner AE, Slee J, Pérez-Jurado LA, MacLennan AH, Gecz J. Pathogenic copy number variants that affect gene expression contribute to genomic burden in cerebral palsy. NPJ Genom Med 2018;3:33. doi: 10.1038/s41525-018-0073-4.

  Gialamas A, Pilkington R, Berry J, Scalzi D, Gibson O, Brown A, Lynch J. Identification of Aboriginal children using linked administrative data: Consequences for measuring inequalities. J Paediatr Child Health 2016;52:534-40. doi: 10.1111/jpc.13132.

  Berry JG, Ryan P, Duszynski KM, Braunack-Mayer AJ, Carlson J, Xafis V, Gold MS; For the Vaccine Assessment Using Linked Data (VALiD) Working Group. Parent perspectives on consent for the linkage of data to evaluate vaccine safety: a randomised trial of opt-in and opt-out consent. Clinical Trials 2013;10:483-94.

  Berry JG, Gold MS, Ryan P, Duszynski KM, Braunack-Mayer AJ; For the Vaccine Assessment Using Linked Data (VALiD) Working Group. Public perspectives on consent for the linkage of data to evaluate vaccine safety. Vaccine 2012;30(28):4167-74.

  Berry JG, Ryan P, Gold MS, Braunack-Mayer AJ, Duszynski KM; for the Vaccine Assessment Using Linked Data (VALiD) Working Group. A randomised controlled trial to compare opt-in and opt-out parental consent for childhood vaccine safety surveillance using data linkage. J Med Ethics 2012;38(10):619-25.

  Harrison JE, Berry JG, Jamieson LM. Head and traumatic brain injuries among Australian youth and young adults, July 2000-June 2006. Brain Inj 2012;26(7-8):996-1004.

  Berry JG, Ryan P, Braunack-Mayer AJ, Duszynski KM, Xafis V, Gold MS; Vaccine Assessment Using Linked Data (VALiD) Working Group. A randomised controlled trial to compare opt-in and opt-out parental consent for childhood vaccine safety surveillance using data linkage: study protocol. Trials 2011;12:1, doi 10.1186/1745-6215-12-1.

  Berry JG, Jamieson LM, Harrison JE. Head and traumatic brain injuries among Australian children, July 2000-June 2006. Inj Prev 2010;16:198-202.

  Berry JG, Harrison JE, Ryan P. Hospital admissions of Indigenous and non-Indigenous Australians due to interpersonal violence, July 1999 to June 2004. Aust N Z J Public Health 2009;33:215-22.

  Jamieson LM, Harrison JE, Berry JG. Hospitalised head injury due to assault among Indigenous and non-Indigenous Australians. Med J Aust 2008;188:576–9.

  Roche AM, Pidd K, Berry JG, Harrison JE. Workers’ drinking patterns: The impact of absenteeism in the Australian workplace. Addiction 2008;103:738–48.

  Berry JG, Pidd K, Roche AM, Harrison JE. Patterns and prevalence of alcohol use in the Australian workforce: findings from the 2001 National Drug Strategy Household Survey. Addiction 2007;102:1399-1410.

  Pidd K, Berry JG, Roche AM, Harrison JE. Estimating the cost of alcohol-related absenteeism in the Australian workforce: The importance of consumption patterns. Med J Aust 2006;185:637–41.

  Berry JG, Harrison JE, Yeo JD, Cripps RA, Stephenson S. Cervical spinal cord injury in rugby union and rugby league: are incidence rates declining in New South Wales?  Aust NZ J Public Health 2006;30:268–74.

  Evans SM, Berry JG, Smith BJ, Esterman AJ. Consumer perceptions of safety in hospitals. BMC Public Health 2006;6:41–7.

  Evans SM, Berry JG, Smith BJ, Esterman AJ, Selim P, O’Shaughnessy J, DeWit M. Attitudes and barriers to incident reporting: a collaborative hospital study. Qual Saf Health Care 2006;15:39-43.

  Berry JG, Harrison JE, Cripps RA, Marshall R. Spinal cord injury register for football: already tackled [letter]. Med J Aust 2005;183:550.

  Evans SM, Berry JG, Smith BJ, Esterman AJ. Anonymity or transparency in reporting of medical error: a community-based survey in South Australia. Med J Aust 2004;180:577-580.

  Kingston MJ, Evans SM, Smith BJ, Berry JG. Attitudes of doctors and nurses towards incident reporting: a qualitative analysis. Med J Aust 2004;181:36-9.

  Smith BJ, Laslett LL, Pile KD, Phillips PJ, Phillipov G, Evans SM, Esterman AJ, Berry JG. Randomized controlled trial of alendronate in airways disease and low bone mineral density. Chron Respir Dis. 2004;1:131-7.

• Professional Associations

  Australasian Epidemiological Association (AEA)

  Public Health Association of Australia (PHAA)

Entry last updated: Friday, 27 Sep 2024

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